Showing posts from April, 2012

Offer it Up

What a beautiful Saturday morning it is today! I've been up since about 2:30 AM, but I'll not complain. I got some reading and internet cruising done, and the fresh air coming in through my open back door is lovely.

A good morning for a bracing cup of tea!

Well, I went to the doctor again yesterday, and she agrees that since my MRI came back clear we could put off a neurologist until/unless weird neuro stuff starts up again. Meanwhile, I know for a fact now that I do NOT have Lyme Disease. Nor do I have CMV. But I DO have Epstein Barr. No big surprise there. My system (slow, sluggish and beleaguered that it is) just hasn't been able to fight it off yet. So I was right...the mono is still flaring up and affecting my life from time to time.

And so it looks like the three things (or is that four?) that we know about are what are going on: Fibromyalgia, Hashimoto's, Epstein Barr, the copper thing, the and hormones (ya gotta pronounce that like the lady on M…

The Tallest Mountain

Every Sunday morning I feel like I am fighting a war. Actually the war starts on Saturday night while I'm sleeping. If/when I can. I never sleep well, and each night of deep sleep comes with the price of weird dreams, a side effect of the Melatonin my doctor has me on. So I put up with bad dreams on most nights in order to feel refreshed in the mornings. Saturday nights/Sunday mornings, the dreams are always particularly vile and I always wake up on Sunday's very very depressed.

Yes, I know. There's a war going on.

And physically I wake up on Sundays feeling beaten. Pummeled. In pain.

Yes, I know. That war thing. It's no accident.

I fall asleep praying, I pray when I wake up at night, and a wake up praying. Lord have mercy. Theotokos help me. Jesus have mercy on me a sinner. It's nothing amazing...just me crying out to God.

And the battle rages on.

Many times, I lose the battle and stay a home. The physical aspects of living with chronic …

GAPS/Paleo/SCD Birthday Cake

Bethany turned 18 today! Congratulations, and God grant you many years! Lemon Cake with Lemon Filling recipe here.

This blog needs a new name

I gave up coffee. Someone forwarded me an article about some reasearch saying that coffee has a protein in it that is cross reactive to gluten. Well, goodbye coffee. I quit the moment I read that article...and I do believe I'm better off for it. Currently I'm swigging my way through the black tea in my cupboard and once that is gone, I'll go with green tea and probably stay with green tea. Unless/until I learn something evil about THAT.

Meanwhile, I do believe taking iron is helping me, as I have a modicum more of energy. Thank God, thank God, thank God!!!!

ANNNNNDDDDDD....I put on a t-shirt that the last time I tried it on was a bit snug, and it fit perfectly. I wore it all day yesterday. Today, I went to put on a shirt that used to fit just fine and it hung like a tent. So, I had to go through all the shirts in my closet, and a bunch of them now reside in a bag destined for the thrift store. Some of them beloved favorites, too. Oh well. I'm not going to…

Holy Week

I feel so blessed. I AM so blessed, regardless of how I FEEL, and one of the things the Lord has been showing me is that I need to focus more oh how much He helps me (because He does!) and less on how tired I am.

This week, I think, God helped me A LOT. I was able to make several of the services. And that was a huge blessing. We did not go to the 12 Gospels service on Thursday night and on Wedesday, our kids were so fried that we scooted out the door as soon as we got our Holy Unction...B had been having a panic attack during the whole service.

So, Thursday night we stayed home and read the 12 Gospels together as a family. I decorated our fireplace mantle with some silk flowers found in our craft bin, and the right icons, and some candles. I know silk is a bit "redneck" but hey, we are shame!

The past two days I've been very busy in the kitchen. I've made SO MUCH FOOD...most of in "diet legal" junk food....GF cream puff shells, GAPS…

Palm Sunday Fail

It was such a blessing yesterday to be able to go to Church and receive communion on Lazarus Saturday.

But that was yesterday.

Today: Palm Sunday Fail.

I was there. I arrived at about 10:20 and stood in the narthex while a baby was being churched. I could feel my energy leaving me at that point. You see, I was barely able to make it in the first place.

That's how my days have been. I do one thing, and I'm exhausted. I plan my days around much needed naps and the rest of the family is picking up my slack.

Almost like when I had mono. No, wait. JUST LIKE WHEN I HAD MONO! (Do I still have mono? Well, as soon as the blood work comes back, we will know.)

Meanwhile, back to my Palm Sunday fail...

So I make it in to churhc. I sit. I can barely hold myself up. Misery. The antiphons are a blur. So is the Epistle and Gospel reading. During the homily I put my head on Wes' shoulder and just drift. Jesus is King. OK, got that. Jesus needs to be King of my whole…

The Garden

Yesterday evening Wes and I took a drive out to the community garden to see what progress has been made.

It was a lovely evening. Insects were already flying in the grass by the road, and the earth had been disced, but not divided into plots yet. We hope to garden two of them this summer.

But there will be much work to be done. Wes wants to work it by hand, and bypass using the rototiller, and to that end he has purchased and spent the winter shapening a mattock. Just a wee step towards less dependance on petroleum products, I guess.

For my part, I just enjoy being out of doors, even if it means sitting and watching, or hobbling around with my cane, which support my legs need by the time evening comes.

After we looked around, we discovered some lettuce growing by the side of the road, so I picked it, and some wild flowers and we munched on some wood sorrel, enjoying its tart and tangy flavors for a few small bites.

While we were there, someone drove by with a horse in full la…


I have added new veils to my etsy shop. I must say, they are very pretty...and just in time for Holy Week and Pascha (Easter)!

Response Video to Why I Hate Religion but Love Jesus by the OCN