1. The illnesses I live with are Fibromyalgia/Chronic Fatigue Syndrome and Mononucleosis and Hypoglycemia
2. I was diagnosed with it in the year: 2004
3. But I had symptoms since: 1998
4. The biggest adjustment I’ve had to make is not being able to be as "involved" in helping other people or being at Church as I'd like.
5. Most people assume that I will eventually get better.
6. The hardest part about mornings are waking up in feeling very sluggish with no "get up and go" and having to eat food I don't care for very much in order to take care of my health.
7. My favorite medical TV shows are the one's that are love ER or Trauma shows. I used to love Dr. House until he started fornicating with his boss and that ruined the show and I stopped watching it.
8. A gadget I couldn’t live without is my comfy chair!
9. The hardest part about nights is trying to get to sleep and then trying to stay asleep.
10. Each day I take about 5 pills & vitamins. That's does not count the muscle relaxers and pain meds I might take occasionally. Usually I try to tough it out.
11. Regarding alternative treatments I get sick of people recommeding them to me. I'm on the protocol I'm on and that's what I'm doing.
12. If I had to choose between an invisible illness or visible I would choose WELLNESS! I would never choose to be sick.
13. Regarding working and career, I've never had a career outside the home. I have been trying to build a sewing business on the side, but will be slowing that down due to my illness...it's just too much.
14. People would be surprised to know that even on "good days", if I focus in, I can find pain in more than one part of my body. It's always there.
15. The hardest thing to accept about my new reality has been… that I have limited energy and that I can't do the things I wish I could do. I always have to "pay later" for exceptional energy expenditures, so my life feels like it's being lived inside an itty bitty box.
16. Something I never thought I could do with my illness that I did was go on a mini-spelunking tour with some American Heritage Girls.
17. The commercials about my illness are stupid and I want to throw a brick at the TV.
18. Something I really miss doing since I was diagnosed is… 1 being more physically active and actually getting FIT, the fibro is like a barrier to that. 2-and spending time with friends and family, I'm just too tired to do that now.
19. It was really hard to have to give up our dog, Java. I could not walk him.
20. A new hobby I have taken up since my diagnosis ...well, I've developed my sewing skills even further. I have also developed my knitting skills, but sometimes my arms ache too much to knit.
21. If I could have one day of feeling normal again I would do normal stuff.
22. My illness has taught me to have a longing for heaven like nothing else in life could have taught me.
23. Want to know a secret? One thing people say that gets under my skin is "are you feeling better yet?" ...because I'm not going to feel better. And if I AM feeling better, I know there's going to be a BAD DAY right on the heels of the "good day" if I do too much on the good day.
24. But I love it when people listen, spend time with me.
25. My favorite quote that gets me through tough times is Lord Jesus Christ, Have Mercy on Me, a Sinner.
26. When someone is diagnosed I’d like to tell them about the Guaifenesin protocol for Fibromyalgia.
27. Something that has surprised me about living with an illness is how much inner strength I DO have to just keep plugging along through life.
28. The nicest thing someone did for me when I wasn’t feeling well was anything
my husband does, day in and day out he picks up my slack, he's stressed
and tired, but when I can't move, he does his work as well as mine.
29. I’m involved with Invisible Illness Week because I may not look sick but I am. And fibromyalgia is not just a throw away diagnosis. It's real, and I'm SICK.
30. The fact that you read this list makes me feel that
maybe I can make a small difference in helping people to understand
that just because someone looks good, doesn't mean that they don't feel